First it was blood...10 tubes of blood to be exact. Thought I was going to pass out! 18 X-rays, then 2 ultrasounds. I was supposed to go to neurology after this but they rescheduled it to a week from now because of all the tests they wanted to run today are taking up too much time and some of the answers might get answered through them first. Then I'm headed to my endocrinologist.
I'm so thankful after seeing literally 5 dr's that I found two who referred me to a rheumatologist. It took a lot of patience and persistence to get anyone to listen to me, but I never lost hope. I've been here before with my hashimoto's and celiac. No one would really listen, they made me feel like I was crazy, but no matter what I listened to my body and pushed on.
When I got here today as I sat in the room waiting in my gown I wondered "will this dr really hear me?" "Is this going to be the final dr who finds what's really wrong?" "Is this going to be a waste of time and more money?" "Am I crazy?!!?"
Well after meeting her, talking and her explaining what she thinks may be going on an her plan for the next few weeks I was put at ease. I'm nervous about the possibilities of what's going on, but I feel like maybe I might be getting the answers--- finally. She hopes to diagnosis me in the next 3 weeks after all re results are reviewed by her and her team. She thinks there's a great possibility that I have RA, lupus or another auto immune inflammatory arthritis disease. She seems sure she can find the answer tho. So I am positive and hopeful. The neuro wants to retest me for MS as well so I'm hoping this is the last of the testing. It's been 2 long years.
I am thankful I have insurance and a supportive few people in my life. I am thankful I am still here with apparently 9 lives, like a cat. I am thankful for having all the specialists I do have that have been pushing through trying to get to the bottom of this. And lastly I'm thankful for for being able to stay positive through this whole process.
Hang in there! Love you!
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