Allergy Testing

Soooo I started allergy testing two weeks ago. Was pretty interesting. Started with all the environmental factors. Then this week starts the 48hr process of food testing. Little nervous for the food stuff, but very excited to start a new chapter in my life, hopefully with a new agenda on what I can and can not eat besides gluten. The dr was amazing and one of the best I've had so far. Caring, understanding, sympathetic... Everything I was looking for. She went over my extensive medical history and kept calling me fascinating and one of a kind. And that's not the first dr, and I know it won't be the last. I should be dead, literally. But I'm not. I'm here fighting daily.

Anyways.... :-)

During my first session I got a glimpse into the reality of my allergies. I've always had seasonal allergies. Started when I was about 12, ironically that's when my milk intolerance started. I always remember how sick I would get each season with no help from Allegra, Claritin, and Benadryl. It kinda all makes sense now after talking to the dr. On a scale from 1-4 I was a 4 on everything except dogs I was fine, and cats I was a 3. But apparently I am a 4 on 4 different seasonal trees, grass, ragweed, mold, mites and 3 other things. They are going to go over all of it on Thursday.

When I was getting pricked with the needles..by the time he got to the last one the MA said "WOW! You're what we call dermagraphic!" I then replied "and that means??!" He explained it meant either I had really sensitive skin or I was allergic to everything and chuckled. But went on to say "but that's highly unlikely."

Well after 10 minutes had passed (a total of 15 minutes for the test to fully set) he came into the room panicked, alarmed and very concerned. He screamed as he first came in. I knew what was up after feeling like I wanted to itch my skin off 8 minutes prior. He quickly started wiping everything off and cleaning my back. He said he need to get the dr and there was no need for the last 5 minutes, that it was already clear and I didn't need to be tortured any longer. He then got the dr and she did the same thing when she came back in...screamed a yelp as she first caught a glimpse of my back and came over quickly and started reading off my results...and she was chuckling as she was reading them..."well here we go...4..4...4...4...4...4...3...4" She also went on to say she hasn't had someone react like that in some time.

She said after everything I had been dealing with, with the celiac and EOE she wasn't surprised. And she said she anticipates the food ones coming back just as clear. Again, I'm looking forward to it! I'm so tired if being sick and being scared of 99.9% of things that enter my mouth.

Here's a few pictures from my experience .... The red one of my back was taken 15 minutes after everything was cleaned off and the swelling started to go down. Ouch!

My everyday

There are some days when I feel like writing something, then ultimately decide not to because I don't want to sound like a complainer...And there's another side of me that says "Why not? You could help someone!" Well...today I have some spare time while the bebe sleeps so I thought I'd get some frustrations out.
I haven't updated much as far as my prognosis and what is going on as of late, or maybe even at all. Most of the time it's because outside of my husband and a few select individuals no one gets my everyday, let alone my life.
About 3 months ago I had to undergo a endoscopy and colonoscopy after 7 months of gluten free and being diagnosed with Celiac disease late April. During that surgery I had nearly 10 biopsies done. That was about 5 more than originally expected. The result was that the Celiac disease really did a number on my intestines, probably from being undiagnosed for so long.There were white blood cells covering my esophagus, intestines and part of my stomach, as well as mucus. The dr also explained to me the mass amounts of damage to my esophagus. Which in turn lead to them finding Eosinophilic Esophagitis also known as EOE. An inflammatory disease usually caused by food allergies but is relitively rare in adults. My dr also was telling me, up until 2011 there were hardly any known cases of this in adults, only children. Which really makes me think. It is also a pretty hard to understand disorder. Go figure it had to be added to my list of issues.
I'm now going through crazy amounts of allergy testing because of it. Just a month previous my dr said I have Fibromyalgia as well. I was 'cleared' last year for MS, but as of recent, I have to go through the testing again. Along with further RA testing after my RA factor came up over the "normal limits."

So at this point I have:
Primary Hyperoxaluria type 2 (Very Rare, DX in 88') Currently have 3 kidney stones..
Hashimoto's (Auto Immune, DX in 09')
Celiac (Auto Immune, DX in 12')
Cervical Degenerative Disc Disease (DX 12')
Trochanteric Bursitis (DX in 12')
EOE (allergies DX in 12')
Fibromyaliga (DX in 12')
Corn allergy (dx in 13)

And in the reprocess of testing for MS and new testing RA and allergies.

Everyday I have symptoms for each and every one of these. Some days I'm in so much pain I can't get out of bed, but I have no choice. I know it could be worse but I wish people that constantly complained about trivial things took the time to say hey you know what, I've got my health and that's pretty solid compared to some people. And I also wish that some people I talked to about my struggles wouldn't compare them to something silly. Makes me cringe and really build a wall up. I wish the things I had we're temporary and silly, but they're not.
Vent done :-)