Monday, February 11, 2013

My everyday

There are some days when I feel like writing something, then ultimately decide not to because I don't want to sound like a complainer...And there's another side of me that says "Why not? You could help someone!" Well...today I have some spare time while the bebe sleeps so I thought I'd get some frustrations out.
I haven't updated much as far as my prognosis and what is going on as of late, or maybe even at all. Most of the time it's because outside of my husband and a few select individuals no one gets my everyday, let alone my life.
About 3 months ago I had to undergo a endoscopy and colonoscopy after 7 months of gluten free and being diagnosed with Celiac disease late April. During that surgery I had nearly 10 biopsies done. That was about 5 more than originally expected. The result was that the Celiac disease really did a number on my intestines, probably from being undiagnosed for so long.There were white blood cells covering my esophagus, intestines and part of my stomach, as well as mucus. The dr also explained to me the mass amounts of damage to my esophagus. Which in turn lead to them finding Eosinophilic Esophagitis also known as EOE. An inflammatory disease usually caused by food allergies but is relitively rare in adults. My dr also was telling me, up until 2011 there were hardly any known cases of this in adults, only children. Which really makes me think. It is also a pretty hard to understand disorder. Go figure it had to be added to my list of issues.
I'm now going through crazy amounts of allergy testing because of it. Just a month previous my dr said I have Fibromyalgia as well. I was 'cleared' last year for MS, but as of recent, I have to go through the testing again. Along with further RA testing after my RA factor came up over the "normal limits."

So at this point I have:
Primary Hyperoxaluria type 2 (Very Rare, DX in 88') Currently have 3 kidney stones..
Hashimoto's (Auto Immune, DX in 09')
Celiac (Auto Immune, DX in 12')
Cervical Degenerative Disc Disease (DX 12')
Trochanteric Bursitis (DX in 12')
EOE (allergies DX in 12')
Fibromyaliga (DX in 12')
Corn allergy (dx in 13)

And in the reprocess of testing for MS and new testing RA and allergies.

Everyday I have symptoms for each and every one of these. Some days I'm in so much pain I can't get out of bed, but I have no choice. I know it could be worse but I wish people that constantly complained about trivial things took the time to say hey you know what, I've got my health and that's pretty solid compared to some people. And I also wish that some people I talked to about my struggles wouldn't compare them to something silly. Makes me cringe and really build a wall up. I wish the things I had we're temporary and silly, but they're not.
Vent done :-)

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